Thursday, February 19, 2015

Day 19 - Alexis Xinnan Allen

In July 2013, my best friend and sister of my heart, saw a picture of a beautiful little girl on an advocacy blog.  She knew that our family was thinking of adopting again so she sent me the link.  Oh my, I fell in love instantly with her picture.  We didn’t know much about heart conditions so we immediately started researching PDA and VSD.  I knew we would be open to CHD because of following stories of little girls who were also adopted from China.  These little girls and their families they touched my heart.  All three of these little girls had or needed heart transplants, one of them had passed away almost a year prior.  For some reason, the thought of going through this with my own daughter did not scare me away. .  We sent her file to a cardiologist and within the next month submitted our Letter of Intent to adopt Lexi.

At the beginning of June, 2014 we traveled to China to adopt Lexi.  When we met her on June 8, we knew there was more going on with Lexi than her heart.  She could barely walk more than a few steps, she had terrible stomach pains and was so terribly thin  (Lexi is in the green).  However, her smile lit up a room and completely melted my heart.

We returned home at the end of June and spent the next few weeks going from doctor to doctor to try to determine what was causing her so much pain.  Toward the middle of July she had an echocardiogram scheduled which ended up showing that her abdominal aorta was almost shut due to inflammation.  Her cardiologist immediately ordered an MRI and as soon as that was completed she was admitted into the hospital.  Yes, Lexi was lucky that her cardiologist looked further than her heart because according to all of the specialists she saw during her week in ICU, she was very close to having a stroke or dying.  Her blood pressure was extremely high but she had very little femoral pulse.  After leaving the hospital that week, she had an additional 5 diagnoses in addition to her CHD.

Today, over 8 months later, she is still a happy little girl who loves her sister and going to school.  Her Lexi’s smile lights up a room and her laughter is contagious.  She loves to play tricks on her baba and snuggle with mama.   Her health issues and the long term effects of these issues are still much unknown.  She is currently in remission from one diagnosis, but remains on medication.  She is followed by six different specialists and seems to be at the doctor almost weekly or more.   Even then, she is still smiling and bringing love to all of us.  We are so blessed to be her family.

Please visit my advocacy site at ATWA Waiting Children.  


LisaE. said...

It's amazing how other mamas give us the courage to step out in faith. Thank you for sharing your story.

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